Category Archives: ENDALZ
Uneasy About the Future
Today, I am reflecting on my 148th Aducanumab infusion, and the realization that my next infusion will be my last as part of this multiphase clinical trial. This is a bittersweet moment for me, as my family and I believe … Continue reading
Posted in Alzheimer's, BIOGEN, Clinical Trials, ENDALZ, Research
Leave a comment
How OpenAI ChatGPT may Help People with Dementia to Write Better
How OpenAI ChatGPT may Help People with Dementia to Write Better As a person living with Alzheimer’s disease, a dementia type, I’ve found that my language skills, vocabulary, and ability to form complete sentences have been impacted. However, with the … Continue reading
Posted in ENDALZ
Leave a comment
Stepping Away and Stepping Back: My Hiatus from Alzheimer’s Advocacy
Stepping Away and Stepping Back: My Hiatus from Alzheimer’s Advocacy It’s been two years since I last took an active role in Alzheimer’s advocacy. Life has a funny way of testing us, and it certainly did so with a series … Continue reading
Posted in Advocacy, Alzheimer's, Clinical Trials, ENDALZ, Leadership, Servant Leadership
2 Comments
The Benefits of Adult Day Programs for Those with Dementia: A Personal Experience
The Benefits of Adult Day Programs for Those with Dementia: A Personal Experience As a person living with younger onset / early-stage Alzheimer’s disease, I was initially hesitant to attend an adult day program. However, my experience at Town Square … Continue reading
Posted in ENDALZ
2 Comments
Participating in the BIOGEN EMBARK Aducanumab and Long-Term Extension Clinical Trial: A Patient’s Journey
Participating in the BIOGEN EMBARK Aducanumab and Long-Term Extension Clinical Trial: A Patient’s Journey As a patient with Alzheimer’s disease, I have been fortunate enough to participate in the BIOGEN EMBARK Aducanumab clinical trial and its long-term extension. In this … Continue reading
Posted in Alzheimer's, BIOGEN, Clinical Trials, ENDALZ
Leave a comment
Aducanumab Déjà Vu
On Friday, November 6th, 2020 the Federal Drug Administration (FDA) held an advisory meeting on the approval of Biogen’s Alzheimer’s medication Aducanumab, see Meeting of the Peripheral and Central Nervous System Drugs Advisory Committee Meeting Announcement. The outcome of the … Continue reading
Posted in Clinical Trials, ENDALZ
Leave a comment
2019 Bradley Beach Walk to End Alzheimer’s
2019 Bradley Beach Walk to End Alzheimer’s Promise Garden Ceremony It’s been almost a year since I was up here, I am so honored to be here again. This year has been one of the more challenging since my diagnosis … Continue reading
Posted in ENDALZ
Leave a comment
Beacon of Hope
I will continue to encourage others to participate in research clinical trials to find a cure for Alzheimer’s whether I continue on to another or not. Continue reading
Posted in Alzheimer's, Clinical Trials, ENDALZ, Research
Tagged Alzheimer's, Clinical Trials, ENDALZ, Research
Leave a comment
2018 Bradley Beach Walk to End Alzheimer’s
2018 Bradley Beach Walk to End Alzheimer’s Promise Garden Ceremony Continue reading
Posted in Advocacy, Alzheimer's, ENDALZ, Walk2EndAlz
Tagged Advocacy, Alzheimer's, ENDALZ, Walk2EndAlz
Leave a comment
2018 Atlantic City Walk to End Alzheimer’s
I had the honor to speak at this walk last year. I’m honored today to have been asked to return. A little about me. I’m a husband, father, retired software architect, son, brother, servant leader, friend, neighbor, recreational vegetable gardener, … Continue reading
Posted in Advocacy, Alzheimer's, ENDALZ, Walk2EndAlz
Tagged Advocacy, Alzheimer's, ENDALZ, Walk2EndAlz
Leave a comment
Center Watch