I try to remain as independent as possible even though I can’t drive and need people to drive me places. Next week my wife and I have the pleasure of being the guests of the Alzheimer’s Association Delaware Valley Chapter’s 2017 Party in Purple Gala. Today I went to get my tuxedo, something I haven’t done in over 30 years, I was excited indeed. The sales women, the store owner, was very happy to help me. There is not a lot of tuxedo rentals this time of year.
I had a pretty good idea of what I wanted, I black tuxedo with a purple vest and purple bow tie. I was thinking in, quick measurements and out, fifteen minutes tops.
Well, things have changed in 30 years. There are so many options for tuxedos these days. Jacket lapel type, shirt type, shirt collar type and shirt color, white or off white, neck size, chest size, arm length. Pants type, pleated and non-pleated, waist size, leg length. Five different shades of purple for a vest that can have many different patterns and shoe type and size.
All these options may sound really attractive and desirable for most people. Let me give you a glimpse into this scenario for someone with Alzheimer’s. It’s a visual you may be familiar with if you’ve seen the game show where the contestant is in a glass case and dollar bills are flying all around and they need to grab as many as possible before the buzzer sounds. In my case I felt like there were numbers flying all around my head in a small room. It was difficult to focus on and gather the options and numbers that were being offered me. The illustration below is really what I was visualizing during my visit.
I struggled for a while and final told the nice woman I have Alzheimer’s and it’s difficult for me to process all the options and make decisions. She was very kind and helpful. We discussed for a while the disease and the awareness work I’m doing. She told me she would like to help support the Alzheimer’s Association for our upcoming walks.
I had a few takeaways from my outing I’ve seen many time before.
- Most people are predisposed to Alzheimer’s being a disease for those in their eighties and it only being a memory issue. Information processing, cognitive issues, balance, language issues are also common.
- Most people are shocked that I have Alzheimer’s because I’m so young.
- Most people, when they find out you have Alzheimer’s, become more compassionate and helpful. People are good, I have found this to be true.
- Most people open up about their own health issues and express their own concerns about memory loss. This is a form of commiseration, people naturally try to let you know they understand (or they are trying to understand) by expressing some similarities and familiarities. To me this is not about diminishing my illness rather it’s a kindness the best way they can show.
A moment in my day to share.